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Councillor Mogford asked: Motor neurone disease (MND) is a rapidly progressing condition – a third of people die within a year of diagnosis and half within two years. As the disease progresses, symptoms worsen and needs increase, often unpredictably. People living with progressive or terminal conditions like MND deserve to live in safe, accessible homes. They have the right to independence and quality of life in the time they have left. It is our council’s role to ensure that local people living with MND are supported to access the home adaptations they need in a timely manner. Without timely support, people face becoming trapped in unsuitable and unsafe homes. This risks significant negative impacts on their health and well-being, including increased risk of avoidable hospital admissions and early entry into care. The MND Association has proposed a set of recommendations and highlighted examples of good practice in their recent report.” Motor Neuron Disease Association Question: Is the current system implemented by NCC fit for purpose in responding to the rapidly changing housing needs of people with MND. Could the Cabinet Member provide details that specifically apply to suffers of MND and similar debilitating conditions in the context of this question? Councillors Lacey and Adan responded: The council recognises that MND can progress quickly, requiring rapid adjustments to mobility and daily living. Our goal is always to help individuals remain independent at home for as long as possible. Adult services routinely deploy occupational therapists to assess and address specific needs. We prioritise urgent home adaptations—such as stairlifts, level access showers, and ramps—where safety, wellbeing or independence may be at risk. We aim to expedite these services for those with fast-changing conditions like MND. Close joint working between Occupational Therapy and the Adaptation teams means that timely applications are made for a Disabled Facility Grant (DFG) to support residents to continue living independently and safely in their own home. Additionally, we promote assistive technology—such as communication devices and environmental controls—to help people with MND maintain independence and quality of life at home. Our assessments always focus on identifying people’s strengths and needs to facilitate independence at home. The Common Housing Allocations Policy outlines how the Council and our Registered Social Landlord (RSL) partners collaborate to allocate social housing. The policy specifically prioritises applicants with health conditions when their current housing negatively affects their health and wellbeing. Newport’s Local Housing Market Assessment and Housing Prospectus have identified a persistent and unmet need for easy-access and adapted properties. To address this, the Council’s Housing Strategy and Enabling team work closely with RSL partners, aiming to increase the supply of such homes through Welsh Government capital grant schemes.
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